WELCOME
My Parkinson’s Nurse is an independent nurse-led online service providing specialist consultations, education, and training for people living with Parkinson’s, their families, and healthcare professionals.
Founded in 2025 by Emma Edwards, a highly experienced Community Parkinson’s Specialist Nurse, the service bridges the gap in support following diagnosis and throughout the Parkinson’s journey. This is a service to compliment your NHS care should you need it.
The service combines 1-to-1 patient consultations, group education, and professional training, delivered virtually to ensure accessibility across the UK and beyond. The mission is simple: to ensure no one faces Parkinson’s unsupported, uninformed, or alone.
Who will be your Parkinson's nurse?
My name is Emma Edwards
About Me
I qualified as a Mental Health Nurse in 1997 after completing my training at St. Lawrence’s Hospital in Cornwall. Following a variety of roles in psychiatric nursing, I joined the NHS Cornwall Parkinson’s Specialist Nurse team in 2010, where I found my passion for supporting people living with Parkinson’s.
Today, I continue my work as a Community Parkinson’s Specialist Nurse in the NHS, now covering Plymouth and West Devon.
In 2025, I founded 'My Parkinson’s Nurse' in response to the many stories I heard from people newly diagnosed with Parkinson’s who felt unsupported, uninformed, and alone. My goal is to ensure that everyone diagnosed with Parkinson’s has access to the guidance, education, and ongoing support they deserve.
Alongside my NHS role, I am the Deputy CEO of SpotlightYOPD, a UK-based charity dedicated to supporting people diagnosed with Young Onset Parkinson’s Disease (YOPD). I also serve as Deputy Chair of the Royal College of Nursing’s Neuroscience Nursing Forum.
I am a member of the Faculty at the Neurology Academy, where I teach on the Advanced Parkinson’s Masterclass. I regularly collaborate with Parkinson’s UK on national projects, speaking events such as Par-Con, specialist forums, and the Research Participation Committee. My work also extends to influencing the national provision of Parkinson’s services.
In 2024, I completed a Chief Nurse Research Fellowship, and I have been an Independent Nurse Prescriber for over a decade.
When I'm not working, I can usually be found restoring my 1875 cottage, walking my Westie along the Cornish beaches with my family, or attempting (with varying success) to grow vegetables in my garden.
Services
A. Patient & Family Support
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1:1 Confidential, Online Consultations (diagnosis support, general symptom advice, treatment education, lifestyle advice).
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Family & Carer Guidance Sessions (tailored strategies to help loved ones provide effective support).
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Support Packages (e.g., check-ins and catch up's if required).
B. Training & Education
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Workshops for Newly Diagnosed (step-by-step guidance for first 12 months).
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Group Education Sessions (medication, non-motor symptoms, lifestyle, coping strategies).
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Professional Training (for nurses, allied health professionals, and care staff on Parkinson’s best practices).
C. Specialist Programs
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Young Onset Parkinson’s Support (tailored to employment, family life, mental health).
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Medication Management & Prescribing Advice - this service to follow once CQC registration is agreed)
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Wellbeing & Self-Management Modules (exercise, nutrition, mental health).
Please note: if you are on my NHS caseload already, and need of a review, please phone my NHS office.
Recently diagnosed with Parkinson's consultation - £150 for 60 mins
On Zoom, I will guide you through all aspects of Parkinson’s, from what is happening in your brain, to the treatments and interventions available to help you manage symptoms.
During our session, we will:
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Explore the symptoms of Parkinson’s in clear, practical terms.
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Discuss self-management techniques that can support daily life.
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Highlight trusted organisations, resources, and current research opportunities.
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Welcome family members or friends who would like to join and learn with you.
After your session, you will receive:
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A summary letter capturing the key points we discussed
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A personalised information pack with printed resources to help you navigate your Parkinson’s journey
⚠️ Please note: Personalised medication advice will not be provided in the newly diagnosed chat.
Ongoing support - £100 for 60 mins.
✨ If you would like to talk again about any aspect of Parkinson’s, I’d be very happy to meet with you. We can arrange a follow-up session on Zoom at a time that suits you.
Medication and individual care planning - pending....
✅ Once I am registered with the Care Quality Commission (CQC), I will be able to offer personalised assessments and advice regarding your medication options.
🤝 With your consent, I can also liaise with your NHS Parkinson’s team and GP to ensure they are kept fully updated with any recommendations we agree upon.
⚠️ Please note: Some aspects of your care cannot be managed safely online and may need to be redirected to your NHS team.
Parkinson's Training for Teams.
At My Parkinson’s Nurse, we provide high-quality training for health and social care professionals who want to build their knowledge and confidence in supporting people with Parkinson’s.
With over two decades of experience in specialist Parkinson’s care and professional education, Emma Edwards delivers engaging, evidence-based sessions tailored to your needs. Training topics can include:
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Understanding Parkinson’s: causes, symptoms, and progression
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Medication management and best practice
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Assessment and care planning
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Wellbeing, self-management, and quality of life
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Suicide awareness and prevention in the context of Parkinson’s
Flexible Delivery
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Virtual training (nationwide)
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In-person sessions (available in Cornwall and Devon)
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Bespoke programmes tailored to your organisation, care home, or school
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Prices available on request
Speaking Engagements
Emma is a sought-after speaker, having presented at conferences, webinars, and specialist forums across the UK. She is available for:
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Keynote talks
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Panel discussions
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Workshops
✨ We would be delighted to work with your organisation to raise awareness, build skills, and improve the quality of care for people living with Parkinson’s.
Gallery:
Further Information & Contact Details
If you would like to book a consultation / training session, please get in touch either by:
📧 Email: emma@myparkinsonsnurse.com or use
💬 Contact Form: Use the Contact box below
We will arrange a time and date that works best for you, along with sharing terms and conditions.
Please note: all consultations must be paid in advance.
This service is open to anyone that lives in the UK - international consultations will be available on request.
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